This past Wednesday, the Lakehead Rotary Club had the pleasure of welcoming Nicole Kowal, Director of Hemophilia Ontario for the Northern Region. Nicole’s story is one of strength, resilience, and love—she and both of her children live with hemophilia, and it’s that personal journey that led her to become a passionate voice for others in the community.
With warmth and honesty, Nicole shared what it’s like to navigate life with a bleeding disorder, and how those experiences have shaped her mission to support and uplift others facing similar challenges. Her passion is undeniable, and her commitment to making a difference is nothing short of inspiring.
After her presentation, we were lucky enough to ask Nicole a few follow-up questions. Her thoughtful responses were too meaningful not to share—and we’re excited to pass them along with you here.
What message would you share with parents of newly diagnosed children?
Take a deep breath, you have a beautiful baby/child. This is not your fault. Focus on the positives or you may miss these moments go by. Follow your gut and remember you know your child the best. You are not alone, never, no matter what time of day someone is a call, text or email away with real life experiences. Being a part of this community is family and friends forever.
In your opinion, what are the biggest challenges children with hemophilia face?
I would say being treated like any other kid and not feeling like they have to live in a bubble. Access to proper health care for these rare bleeding disorders at any age no matter where you live should be a given.
How can the general public support the work of Hemophilia Ontario?
The public can volunteer for our bingos, financial donations, follow our social media pages and share with everyone they know to make more knowledge of what bleeding disorders really are. By sharing, following and talking with others this creates awareness to our rare but might community.
Thank you, Nicole, for taking the time to share your story with us and for opening our eyes to a condition many know so little about. Your words brought awareness, compassion, and a deeper understanding—and we’re grateful for the opportunity to learn from you.
